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SUPPORT & CARE - MYOTONIC DYSTROPHY FOUNDATION, MYOTONIC DYSTROPHY FOUNDATION

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• Description: Works to increase public education surrounding Myotonic Dystrophy, enhance the quality of life of people living with Myotonic Dystrophy, and accelerate research focused on treatments and a cure.Programs include funding critical research, providing comprehensive resources and support to affected individuals, and advocating with government agencies to enhance the drug development pipeline, increase research funding, and improve patient services.Offers the following resources and educational pages: Anesthesia Guidelines Digital Academy Family Planning with DM Find a Doctor Financial Resources Insurance Considerations Juvenile-onset Adults Testing & Diagnosis Toolkits & Publications Working with Your Care Team Support Groups Warmline
• Website: http://www.myotonic.org
• Email: info@myotonic.org
• Phone(s): (866) 968-6642, (415) 800-7777
• Hours: Office: Monday through Friday 8:30 am - 5 pm
• Eligibility: Open to individuals with Myotonic Dystrophy and their family members.
• Requirements: No documents required.
• Areas Served:
  • United States
• Categories:
  • Health Related Advocacy Groups
  • Health/Disability Related Support Groups
  • Disease/Disability Information
  • Health/Disability Related Counseling
  • Advocacy
• Contacts:

Location(s)

Location Name: MYOTONIC DYSTROPHY FOUNDATION

• Accessibility: Fully accessible to individuals using mobility aids.
• Physical Address: 633 13th Street, Suite 100, Oakland, CA, 94612